Monday - Another Busy Day

Gracie had a pretty good night, although for about 30 minutes in the wee hours of the morning she was extremely restless and kept crying out in her sleep and tossing and turning. She finally fell back asleep by my feet and stayed there the rest of the night. I ended up having to wake her up this morning. I find that if I wake her up by singing "Deyo" (The Banana Boat song) she awakes in a good mood. Otherwise, not so much.

It was a little hard getting a move on this morning and realizing we had a place to be after her week home with daddy. Gracie went back to daycare today and was happy to see all of her friends there. She ate a good lunch and had just finished a snack when I picked her up at 3:30 p.m.

We headed home to meet with Sandy, Gracie's physical therapist. We worked on outdoor skills, walking in the grass, up and down the hill, climbing the deck steps, and stepping up on and down off our little porch platform. Then we came inside and worked on crossing her midline with her arms, and getting into her wheelchair all on her own.

Then it was time for a quick supper. Gracie had a total meltdown and I couldn't figure out quite why. I finally realized she has decided she no longer likes ravioli and did not want to eat it. So once we got her calmed down, all was well and she was only to happy to eat other things.

After supper we went to a Birth-to-Three playgroup. This is a playgroup of the kids that are served by the Early Intervention Team. We arrived a little late, but joined in on the music program. Gracie wasn't sure what to think, but when the drums and other instruments came out, she warmed up. At the last song, Gracie crawled away from Jeff and I and sat in the music leaders lap. Then it was time for free play, we went out to the playground where they have adaptive playground toys. The swings there were the best and Gracie got to fly high. She was giggling and having a great time.

She was so tired by the time we got home, she fell asleep in my arms drinking a bottle of formula. I layed her in bed and she is sleeping soundly.

If you have time for some extra prayers, Gracie has a follow-up echocardiogram on Thursday and then we meet with her cardiologist afterward. Gracie has thickened valves that could cause problems and could result in surgery for valve replacement, so needs to be followed closely. Any prayers that you could offer for a good report would be very much appreciated. Thank you!

Love,
Lisa, Jeff, and Gracie