Wednesday, June 30, 2010


Gracie had a good night and was awake when I got out of the shower this morning. She was snuggling with daddy and was happy as a lark. She's been really good about taking her meds with her coconut milk yogurt lately, as long as I have a side order of M&M's with it. There is no question who the boss in this house is. It's an almost three year old with lots of attitude and the best smile in the whole world.

Gracie got to go to the park today at daycare. She also got to have mommy and daddy drop her off and pick her up. That doesn't happen often, but we had one vehicle in the shop. After we picked up the van, we had a few errands to do. Gracie was great in the stores, but disliked the in and out of her car seat.

We had hoped to get out and play, but with the errands and a later supper, it was then bathtime and bedtime quickly followed. She was a splashing queen until she peed in the tub. Oops.

Tonight when I layed in bed with her, she looked up at me and said "night" for "goodnight". This was totally unprompted. She is now fast asleep, rejuvenating for the new day tomorrow.

Lisa, Jeff, and Gracie

Tuesday, June 29, 2010


Gracie got to sleep in a little later today as she her early intervention teacher and OT came for their visit to our house. We ended up taking more than our alloted time, but Gracie was having a fun time and entertaining us all. Then we headed to daycare, were just about there and realized that we had left her blankie at home. So we turned around and headed back to get it.

Gracie was outside with her buddies when we picked her up at daycare and then we headed to the Good Food store to get her some more coconut milk yogurt. This has been an awesome find. She loves yogurt, but can't do the dairy...this stuff is yummy and so much better than soy yogurt.

We played outside for a little while before supper. She ate a big supper of chicken, tater tots with ketchup...or was it ketchup with tater tots, one can't be too sure, peas, and coconut milk ice cream for dessert...actually she got dessert first so we could get the meds in.

After supper we went for a stroller ride and then hit the playground where Gracie played on the swings and slides and climbed the jungle gym. Then back home. Gracie noticed a hot air balloon in the sky and said "balloon". Sure enough, she was right.

We had a huge meltdown when it was time to come inside for a bath. Gracie was the splashing queen in the tub tonight. She danced a little with daddy after bath and then into bed. She fell asleep very quickly.

Lisa, Jeff, and Gracie

Monday, June 28, 2010


Not too much to report today. Gracie had a good night and slept in a little longer than usual. She awoke a happy girl and Jeff took her to daycare, with me picking up. She got to go to the park today and tonight after supper we went for a walk. Gracie lost her balance and fell forward on the sidewalk. She hit her chin, hands, and knees. I could tell it hurt and she fussed a bit, but she did not want to held or baby'd, she wanted to walk it off. She can be such a toughie sometimes.

After our walk, we came home, put Gracie in the stroller and headed out for me to have a more brisk walk. When we passed by the local school, Gracie insisted we stop at the playground. She is doing so good climbing up to the slide and sliding down. She also does quite well climbing up the sidewalk. I know that is supposed to be a "no-no", but our PT encourages it as it works on different muscles.

After our walk we warned Gracie we would have to go inside. Well when the time came it wasn't pretty. We had a pretty nice tantrum. Ugh.

Gracie had a hard time falling asleep tonight. Once asleep, she awoke again and came out searching for us, but fell back to sleep quite quickly.

Lisa, Jeff, and Gracie

Sunday, June 27, 2010

The Weekend

It was Gracie and I against the world this weekend. Jeff worked all weekend and long hours since Thursday, so Gracie was missing him greatly. She would get up, run into the living room and then coming running back with a sad look on her face.

Gracie was good as gold this weekend. She was sweet, social, helpful, happy, and just overall content. On Saturday we went to get her flowergirl dress fitted. It's a good thing we waited to get it altered as there isn't much altering to do with her latest growth spurt. We'll tuck the straps a bit and hem it up and she'll be good to go. Gracie took all of the women at the bridal store for walks, not one was left out. They told me they thought I needed to bring her in at least once a month so they could get their Gracie fix. Then we went to visit Grandma & Grandpa D. for a few minutes. Gracie was thrilled to get to pet Poco, one of their cats. In the afternoon we went to Target and to the Hallmark store. Gracie was so good in both stores. She loved all of the pretty things in the Hallmark store and even told me that some of the chimes were "pretty". Her favorite were the lighted Halloween figurines that moved...a witch flying on a broom was her most favorite. Gracie got to see daddy for about an hour before she had to go to bed and she was delighted. Gracie is in love with the Michael Jackson thriller CD, so they danced to that and I looked at her as she was laying on Jeff's shoulder and she had the biggest smile on her face.

Sunday when Gracie woke up, she was covered in blood again. Yes, another one of her lovely nose bleeds. The sheets and pillow cases cleaned up, but her pillow was a casualty. It was soaked. So we made that our outing today, to go get her a new pillow and a waterproof pillow case cover to go under her pillowcase. Gracie wasn't as chipper today, she seemed to be struggling a bit with constipation, but that thankfully resolved itself mid-afternoon and then we had a much more chipper girl. We went to go for a walk and when we got to the end of our block, Gracie saw her ENT surgeon, who we all love, and is moving away. They were loading up a big truck. Gracie ran right to her with smiles and they played for awhile and Gracie got to go see in the big truck and she told us all repeatedly that it was a "truck". Dr. D. knows how much Gracie loves dogs, so she let her big dogs out to play and they were a huge hit. Gracie was in her glory. When it was time to leave, I asked her if she wanted to give Dr. D a hug. She said "no", then she went up to her and gave her a kiss on each cheek. It was so sweet. We will miss Dr. D. -- she is awesome.

Tonight Gracie insisted we go outside and that is where we spent the whole evening...first a wagon ride and playing at the local school, then a walk, then a stroller ride while daddy mowed the lawn. When daddy was all done, Gracie insisted upon pulling the shut off lawn mower down the street and back again. She was loving this. She got so mad when it was time to go in the house. She did fall asleep very quickly. I think she got her work out.

Auntie Sheila...we're back to Dora pj's tonight, since you aren't a fan of her Spongebob ones. :)

Lisa, Jeff, and Gracie

Thursday, June 24, 2010

Thursday - More New Friends

Gracie had a good night's sleep and was so peaceful this morning that I didn't want to wake her up. I even opened the shade in her room, thinking that would wake her up -- nope.

Gracie had a good day today and when we got home from daycare we ate a quick supper and went outside for a walk. When we were just about home we saw our neighbor family a number of houses down had a puppy - a beautiful black standard poodle. This family has six children and they are the nicest kids, and parents too. So we stopped to see the puppy and they let Gracie pet him. I was talking to the dad, when I looked over and Gracie had slipped her hand into the hand of the 12 year old. They were so good to Gracie, letting her pet their new puppy. Then they took the puppy for a walk just a little way down the sidewalk and Gracie was right in with the other kids. It was so sweet to see her joining in.

Daddy had to work late tonight and I was just reading her a bedtime story when daddy arrived home. She greeted him with the biggest smile.

Now she is sleeping peacefully. Spongebob jammies tonight.

Lisa, Jeff, and Gracie

Wednesday, June 23, 2010


Gracie had a bit of a restless night at times, although the storms didn't bother her at all. She woke up with smiles and was thrilled to eat her meds with a cake donut with chocolate frosting. Oh how my nutritional standards have gone down hill when it is seizure medicine time.

Jeff dropped Gracie off at daycare and I picked her up. She went to the mailbox with me when we got home and were thrilled to get a new book from the Dolly Parton Imagination Library. "The Spiffiest Giant in Town" was a hit and I had to read it twice.

Tonight after supper we went outside for a walk. Gracie's latest fun is that she likes to run up in other people's driveways and have us chase her and tell her that it's not our house. It's a big game and she just giggles. She walked the whole extended block and didn't ask to be carried at all. She was so tired when we got home. We put on jammies, read two books, and she fell asleep quite quickly.

Ballerina jammies tonight!

Lisa, Jeff, and Gracie

Tuesday, June 22, 2010

Tuesday - PT

Gracie had a good night sleep, but when she awoke there was blood all over her face, her pj's, her sheets, her pillow, and her special blankie. We washed her up, but no time to wash blankie before daycare, so we sent her with a substitute blanket.

Gracie had PT today and we met out at the playground of the school she will be going in the Fall. There was no shade and the thermometer there was registering 100. It was too hot to play on the equipment. She did crawl through some of the tubes. Emily, her early education teacher, was there too. At one point Emily said "Where are you?" and Gracie said it right back. She was very verbal this evening. She was so hot. We kept her hydrated and kept spraying her down, but we just couldn't keep her cool. On the way home Gracie and I stopped at the store to pick up some coconut milk ice cream and the poor little thing walked inside the freezer and sighed in relief. I had to pry her out.

Gracie was in a very good mood tonight. At one point Jeff was trying to change her diaper and she didn't want to lay still. So I came to help hold her in one place. She was still super wiggly. I told her "Gracie, how can one girl make it so difficult to change her diaper. I think we need to teach you how to sit on the potty chair and go potty. She immediately got up, went to the bathroom and insisted upon sitting on the toilet for awhile. I'm thinking potty training isn't as far away as I thought it was.

Gracie is now asleep in her mis-matched jammies. Does anybody know what I did with her "Hello Kitty" pajama top? I didn't think so.

Lisa, Jeff, and Gracie

Sunday, June 20, 2010

Sunday - More Family Time

Gracie had a good night's sleep and awoke in a good mood. The first thing she greeted me with at the bathroom door as I exited the shower. "Mooooooooo". I guess she still had cows on her mind.

We headed 45 minutes away to my great-niece Maci's baptism (congratulations sweet Macie - we love you). We got to see family and friends and had a nice time and a nice meal afterward. Gracie enjoyed herself and enjoyed taking family and new friends for walks. She did put her hand on another little girl's dads back and was quickly told "not to touch her daddy". This cracks me up, because if Gracie was more verbal, I could hear her saying that. She was a bit jealous when I was holding baby Kenzie (another great niece).

Then we headed to my parents for the afternoon. Gracie took a quick nap at their house and we had a nice visit. We got my parents all to ourselves, which doesn't happen often, so Gracie had a great time with Grandma and Grandpa. She especially liked dancing to their polka music. We had supper with them, visited a little longer and headed home. Gracie did great on the drive home, mostly because she watched DVD's the whole way home.

When we got home, Gracie had a royal meltdown. It wasn't pretty and I know it was brought about by not enough sleep this weekend. Once she calmed down, she was our sweet girl again and asked for daddy when I layed down with her. She needed to give him a goodnight hug -- a nice end to Father's Day.

Gracie is now sleeping peacefully.

Lisa, Jeff, and Gracie

Saturday, June 19, 2010

Saturday - Cows Say "Moooooooooooo"

Gracie had a good night last night. We've had quite a few of those in a row. It makes me wonder if most of the tossing and turning she used to do was because her ears were always bothering her. Hmmmm.

Gracie was mommy's girl all morning and did not want me out of her sight. She was not happy when I went to take a shower.

We had an early lunch and headed to Wisconsin to my Goddaughter's (and great-niece) graduation party. Congratulations Elizabeth! We're so proud of you. Gracie did pretty good in the car and even took a 30 minute nap, thankfully. Once we got there it took her a little while to warm up, but once she did she had a really good time. There were dogs and a cat that made her very excited. Then she got to go see the calves and she was delighted. This was the first time she has seen a cow close up and we had to make many trips to see them. I've worked on "what does a cow say?" with her for a long time. She learns so much easier when she has first hand experience. Now if you ask her what a cow says, she'll be sure to tell you "mooooooooooooo".

Gracie was so tired, we were hoping she would sleep on the way home. Well about 20 - 30 minutes from home she finally fell asleep. I carried her into the house, changed her diaper and clothes and she went right back to sleep. She is sleeping very soundly and peacefully.

Lisa, Jeff, and Gracie

Friday, June 18, 2010

Friday - New Friends

Gracie slept great last night. Stormy weather must be soothing for her -- go figure. She awoke in the best mood. She was so sharp today too with words and signs. When Grace got up she walked into the kitchen and handed me a glass, this means she wants a drink. I asked her if she wanted water or juice and a little voice said "juice" and then she walked to the fridge to help me get it. She had all sorts of words for us.

Gracie's blankie didn't make it to daycare with her, so nap time was minimal at best. Oops. Despite not having a nap, she was in quite a good mood this evening. We took a walk around the neighborhood to assess the storm damage. Tree branches and leaves everywhere, trees uprooted. Gracie now knows the sign for tree and leaf and she used them quite a bit tonight as we had to walk around tree debris on the sidewalk.

We met some new friends tonight in our neighborhood, just one street over. We met two ladies who have lived here for over 25 years. They introduced us to their three dogs and Gracie just loved them. We had a nice visit and were invited back to say "hi" another time.

Gracie fell asleep quite quickly tonight. She was one tired girl.

Lisa, Jeff, and Gracie

Thursday, June 17, 2010

Thursday - Big Storm

Due to the big storm going through our city, the Gracie Blog is on storm watch for the night. Gracie had a good day. We've already had to wake her up to take her to the basement. She is back to sleep now. We are all well and thankfully did not blow away.

Lisa, Jeff, and Gracie

Tuesday, June 15, 2010

Tuesday - And Another Good Day

Gracie had a very restful night and was awake, happy, and ready to start the day by 5:30 a.m. She gobbled down her meds and a couple mini-muffins and was ready to dance. She watched Mickey Mouse Clubhouse while I got her dressed.

I took Gracie to daycare and she was very sober in the car, but very silly once we arrived. Daddy picked Gracie up and they played outside for a bit. We ate supper when I got home and then went for a nice long walk. It was a beautiful evening and Gracie was a little energizer bunny. She walked very very fast and jabbered the whole time. She was quite silly at times.

Then we played on her swing and slide for a little bit before bath time. Daddy and Gracie had splash wars in the tub again. Gracie had a hard time falling asleep, but she is sleeping peacefully now in her ballet slipper pajamas.

Lisa, Jeff, and Gracie

Monday, June 14, 2010

Monday - Another Good Day

Gracie had an awesome night and slept very peacefully. When it was time to wake up, she didn't want to. I had a hard time waking her up. She got to have mini-muffins for breakfast and thinks it is so much fun to pick her own out of the package. She gobbled her meds up as well. She was in a great mood.

I took her to daycare and Jeff picked her up. They had time to play and snuggle (she wanted to be held alot) before I got home. She was happy to see me when I walked in the door and was a pretty happy girl all night. Her appetite is back big time. I picked up some cinnamon swirl bread at Target on my way home and she ate three slices. This after eating a good size supper. I think she must be growing again.

Jeff used Gracie as a human curling bar tonight and she thought that was great fun and kept telling him "more, more". If he keeps that up, he's going to be majorly pumped up before long.

Gracie is now sleeping peacefully.

Lisa, Jeff, and Gracie

Sunday, June 13, 2010

Sunday - Another Good Day

Gracie had a very restless night. Around 2:00 a.m., she kept pulling at her ear and hitting at it in her sleep and tossing and turning and fussing. I gave her some Tylenol thinking maybe it was an ear infection. After that she slept soundly until 6:00 a.m. She didn't fuss about it at all any other time today, so I'm not sure what was going on.

Gracie was a pretty good girl in church. She loves the music at Jeff's church, but doesn't love to sit so much during the sermon. Daddy finally took her out for a while. After church we came home, had some lunch, Gracie and I took a walk outdoors during a lull in the rain, while Jeff ran to Home Depot to get some wood for the steps up to Gracie's swing/playset. It came with a rock climbing wall rather than stair steps. Not a good option for Gracie. We were able to order steps on line to go with this set, but needed the wood for the actual steps. So Jeff installed that today.

Gracie took an hour nap this afternoon, then we headed to the mall to return some pants that didn't work out for Gracie. We let her run a bit and wear off some steam.

Gracie was in a great mood today and it is so nice to have her feeling good again. Having her be sick for so long really makes me appreciate the healthy days.

We took another walk after supper and she was in a great mood, running and jabbering. Then into the tub for a splashfest with daddy. She was so tired by the time we put her in bed. Sweet dreams little one.

Lisa, Jeff, and Gracie

Saturday, June 12, 2010

Saturday - Happy and Healthy

Gracie slept until 8:20 a.m. this morning. This is UNHEARD of at our house. She had a pretty good night with a few restless hours around 2:00 a.m., but then back to good sleep again. She awoke in a great mood and was a happy healthy girl all day.

Unfortunately I woke up and was dizzy with a back that was hurting me -- I'm thinking a kidney infection. So I spent a good deal of time in bed while daddy and Gracie played. I started feeling a little better later this afternoon, so I got a little play time in too.

Gracie ate and ate and ate today. I think she is working on gaining back the 4 lbs. she lost with the flu. Even more than ate, she drank a ton. Let the rehydration begin.

Since it was rainy here all day, Gracie was cooped up in the house but did very good with that. We watched a little too much TV and listened to lots of music. Gracie chattered and sang alot today. She was in such a happy mood. I think she is happy to be healthy again too.

She is now fast asleep, dreaming of playing outside on her new playset. Speaking of is the picture I promised you a week ago.

Lisa, Jeff, and Gracie

Friday, June 11, 2010

Friday - Home with Mom

With Gracie's continued diarrhea, I stayed home with her again today. I'm happy to say, I think the stomach flu is behind us. She had a very good day. She asked for fluids all day long and had specific food requests as well. She opened the fridge herself (I knew this day would come) and took out some yogurt to eat. Then she kept fussing about wanting something on the cupboard, but was very frustrated that I didn't understand what she wanted. I finally knelt her on the cupboard and told her to show me what she wanted. She went to the toaster and motioned putting something in the slot. She wanted a frozen waffle toasted. She took her meds with absolutely no problems at all and ate a good lunch.

Gracie took a very short nap today, only an hour. Then we played outside for a while and took a wagon ride. She was doing so good that we decided to meet Grandma & Grandpa D. at the mall for supper. Gracie ate and ate and ate and ate. Then we walked down to the play area and Gracie made a new friend. A four year old girl named Debra took Gracie under her wing. They played that they were princesses. Everywhere that Debra went, Gracie went and she loved being included. At one point I looked up to see Debra, Gracie, and another little girl all holding hands. So sweet.

Gracie also got to see Michelle and Krystal from her daycare at the mall and had hugs for them as she hasn't been at daycare all week. I think she is missing her friends.

Gracie was very tired tonight when we got home. She is now snoozing peacefully in her Dora the Explorer pj's.

Lisa, Jeff, and Gracie

Thursday, June 10, 2010

Thursday - A Good Day

Gracie had a really good night last night. This was the first night in a long time that she didn't pull or rub at her ears in her sleep. YAY!!!!! She awoke at 5:30 a.m. and was quite adamant that she help daddy eat his bagel. She took the top half as her own. I shoveled in the meds and all was going fine until the last spoonful of applesauce of meds, she held that in her mouth with a big piece of bagel. She also held her tummy so I knew she wasn't feeling great. I finally dug that out and a little later offered her meds in some coconut milk yogurt (a new find at the Good Food Store) -- thanks for the suggestion, Leah! She held that in her mouth and let that fall into the tub while she bathed. After she had a pretty loose diaper, all was fine. Then she ate that last med with some applesauce and crackers.

Gracie got to hang out with Auntie Cheryl and Cousin Crystal this morning and thought that was a great treat. Crystal let her play on her computer -- big hit. Auntie Cheryl gave her a piggy back ride -- another big hit.

Gracie's appetite came back at lunchtime and she ate better than she has in a while. I offered her some afternoon snacks, but she didn't want anything, but by the time supper came around she was starving. I've never seen her shovel chicken into her mouth so fast in my life. She also took her meds with no problem at all. Gracie was so thirsty today. She would go get a glass off the counter and give it to me and tell me she wanted "juice". She guzzled and had many great wet diapers. Another yay. Oh the little things that make me happy.

This evening we took walks and wagon rides around the neighborhood and Gracie was thrilled to be in the fresh air.

The best news of all is that we did not see any seizure activity. A great relief and prayers answered. Thank you all for the prayers and good thoughts.

Lisa, Jeff, and Gracie

Wednesday, June 9, 2010

Wednesday - Ear Tubes Are Out!

Gracie had a very restless night. She awoke at 12:15 a.m. with the diarrhea. I changed that diaper and by the time I returned to her bedroom, she had filled another. I changed that one and returned again to a third. I have no clue where all this is coming from, because she's hardly eaten a thing.

Gracie woke up at 5:30 a.m., perfect timing to give her seizure meds as she had to stop drinking shortly after. Her neurologist prescribed a few tablets (rather than the regular capsules that have to be taken with food) of seizure meds so we could desolve them in water. I syringed them into Gracie's mouth but she refused to swallow. That was a lovely fight that mommy won. I'm not sure how, but God was with me.

Gracie's ear tube removal surgery was today. She did great and the tubes are now removed. We made the right decision to have them removed as they were so caked in ear wax they would never have come out on their own. Her ears had been bothering her so much lately and I've not noticed her tugging at them at all today.

The anesthesiologist gave Gracie a pre-anesthesia med which made her act like a drunk baby. She became extremely loud and goofy. I was able to gown up and carry her into the O.R. She had everyone laughing in there as she was ooohing and aaahing loudly over the bright lights. Then they gave her the mask with the anesthesia. It was bubble gum scented. A big hit. Gracie took the mask and put it up to her own nose. She essentially put herself to sleep. The procedure itself didn't take long at all. I love her surgeon, who unfortunately will be leaving at the end of the month.

Gracie was hungry girl after she awoke. She ate 10 saltine crackers, 2 fruit and grain bars, and drank 2-1/2 glasses of water. This fasting stuff is no fun.

The trip to the car and home was not great. She became a wild animal. I had a hard time getting her into her car seat as she kicked, bit, and screamed at the top of her lungs. I have welts and bruises on my arms from bite marks. She screamed all the way home at a pitch I have never heard before. She fell asleep immediately upon coming home and slept for 2 hours. She awoke with a major attitude adjustment, so I think it was a combo of the being so tired and the anesthesia.

We played outside for a while this afternoon and took a nice walk. Gracie also ate more food today, although still has the diarrhea. It was so good to see her eat. She has lost 4 pounds from this nasty flu bug.

She is asleep now and I'm ready to go to bed too. It's been a long day. Thank you to all for the prayers and good wishes. Gracie has not had a seizure this afternoon. YAY!!! I'm home with her tomorrow as well as they want me to keep a watchful eye on her for 24 hours.

Lisa, Jeff, and Gracie

Tuesday, June 8, 2010

Dealing with the Stomach Flu

Sorry no posts on the blog for awhile. Gracie has had the stomach flu -- explosive diarrhea and projectile vomiting. Our biggest challenge is getting meds in her as she doesn't want to eat anything.

On a fun note, Jeff and Grandpa D. built Gracie a playset in our backyard this weekend. Now she has her very own swing and slide. She loves it. I will post pictures at a later date.

We go into the hospital tomorrow for ear tube removal surgery. A simple procedure, however a little more difficult for Gracie with her seizure disorder and the possibility of seizures. It was just after her ear tube insertion surgery that she had her first seizures. So any and all prayers are welcome and appreciated.

I'll try to be better about getting back to daily posts. [additional comment from Jeff: Lisa is humbly forgetting to mention that she/we were locked out of our blog for 2 days, which makes it hard to update it too. :-) ]

Lisa, Jeff, and Gracie

Friday, June 4, 2010

Friday - Feeling Better

Gracie had a very restless night but awoke in a good mood and was a major daddy's girl today. She followed him around like a puppy. When he took a shower she planted herself in front of the bathroom door, knocking and yelling his name (or actually her name for him: ma-mon). Gracie ate her meds like a good girl and but didn't really want any breakfast until daddy came to eat. Then she shared his breakfast with him - Toaster Struedel and Chicken Gumbo soup. I know, a weird combination.

Jeff took Gracie to daycare and I picked her up. I was greeted with a huge smile and she came running over, lept into my arms, and gave me a giant hug. When I put her down I asked her if she had a good day. Her response was her common response lately, "no" with a shake of her head. Then she smiles.

We had a good night. Gracie and I ate a quick supper while Jeff was at the grocery store and then he dropped us off at Target to get diapers and he went to Home Depot. Gracie was quite distressed when we came out of the store and daddy was nowhere to be found.

It was such a nice night out that we went for a walk when we got home. Almost nice enough to sleep under the stars, that is if that type of thing appealed to us. Ha!

Gracie is sleeping peacefully now. She has to rest up because Grandma and Grandpa D. are coming over tomorrow to help daddy build Gracie a swingset/playset for our backyard.

Lisa, Jeff, and Gracie

Thursday, June 3, 2010

Thursday - At Home With Mom

Gracie had a pretty good night, but awoke with explosive diahrea, it was very evident she didn't feel good, only wanted to be held, and wanted absolutely nothing to eat. After a while I finally convinced her to eat just enough soy ice cream to get her seizure meds down. That was the extent of breakfast. The nasty diapers continued and I'm pretty sure she had a stomach bug and this was not yogurt causing the problem as I first suspected.

Gracie wanted nothing for lunch and she didn't want much to drink either. She did have a bath and was quite happy in the water. All in all, she wasn't unhappy, she just was needy and wanted to be held and snuggled. Gracie fell asleep at 11:00 a.m. and slept until 1:30 p.m. I snuggled in bed with her til 2:00 p.m. and then convinced her to eat a few crackers and drink a little Gatorade. After nap, I could tell she was feeling a little better.

Then we headed to the clinic for Gracie's ear tube recheck. She is scheduled for surgery on June 9th to get the tubes removed. It was a hard decision for us as the tubes are out of the drum, but we've done the wait and see game and they aren't falling out on their own. They bother her quite a bit and she pulls and rubs at her ears in frustration. I think the biggest deciding factor is that the doctors would not be able to see if she has an ear infection or fluid on her ears as the tubes are in a position that block the view. If you'll remember, Gracie's initial ear tube surgery was when her seizures began. I've talked with Gracie's neurologist and we need to make sure she has her meds that day. We have to change to a tablet that day so we can dissolve them in water as she can't have any food with anesthesia. They will also have to have rescue meds ready to go in case she would seize coming out of anesthesia. We would appreciate any and all prayers for Gracie's health and a good outcome.

We also had a blood draw this afternoon to check her Ferritin levels. Low levels of Ferritin were causing very restless legs in her sleep. I've noticed improvement since we have been giving her a vitamin with iron, so I am optimistic regarding these results.

Gracie was her social self at the clinic and made many new friends. We walked into the elevator at the ramp and two very nice women smiled and said "hi". She was instantly attentive and then when they ended up being on another elevator with us, she had to hold one of their hands. Then to the lobby at ENT, we connected with an elementary education reading teacher and her mother. The teacher had an iTouch. Gracie was intrigued and pretty soon she was playing games on it and listening to music.

She was happy to see her ENT physician until it was time to look in her ears. We had to hold her down. I think it took three of us. Then off to the lab for the blood draw, which was done by our dear friend Anita. Anita drew Gracie's blood every week when she had I.S. and believe it or not, Gracie came to love her. Gracie still loves Anita and although she wasn't thrilled with the blood draw, she did pretty good. Actually I think the issue was more that she had to lay down and be held.

Then we came home and Gracie ate a pretty good supper of pasta and chicken in a mild broth, some peas, some peach smoothy baby food stuff that I convinced her was yogurt. Then a little later she helped me eat my Chinese food.

Gracie was a very good girl today. We had very little tantrum type behavior, she listened, was helpful, including setting her own place at the table for supper.

She is sleeping now, but seems quite restless. For those wondering's Dora the Explorer jammies tonight. :)

Lisa, Jeff, and Gracie

Wednesday, June 2, 2010


Gracie had an okay night, not perfect but not as restless as she has been the last couple of nights. She did not want to wake up this morning and she did not want to take her meds either. Her first spoonful of meds with applesauce was purposefully dropped out of her mouth. I got out the yogurt and gave her the meds with that. She loves yogurt, but it makes her not feel well because of the dairy. We've tried soy yogurt and she doesn't like that.

Gracie had a good day at daycare and came home to meet with Emily her special education teacher. Gracie was quite tired, but was very happy to see Emily and had lots of smiles for her. After Emily left, the only way I could get Gracie to eat her meds was with a chocolate chip cookie and a pear. She ate very little, again, just enough to get the meds in. She wanted nothing else to eat and had two pretty nasty diapers. I wish I could find some yogurt or something similar without dairy.

Gracie didn't really want to go to sleep tonight. So as she was supposed to be falling asleep, she picked up her stuffed bunny and told me "bunny", then to my amazement, she said "hop, hop, hop". Then she took the bunnies paw and helped it wave and she said "bye".

She is now sleeping very peacefully in her Hello Kitty pajamas. Meow.

Lisa, Jeff, and Gracie

Tuesday, June 1, 2010

Tuesday - Back to the Routine

Gracie had a very restless night last night. She just couldn't seem to get comfortable. That made for a short night for me. She was still so tired when I woke her up at 6:00 a.m. She ate just enough bites of breakfast to get her meds in, then we got dressed and headed to daycare and back to the weekday routine.

Gracie had a good day and daddy picked her up at 3:30 p.m. as he is on early shift. They played out in the rain when the got home and got all wet. Since it was a warm rain and Gracie learns best from experiencing, Jeff let her stick her hand out of the garage...then she would get braver and braver.

Gracie had a meltdown at supper time, but other than that one was a very good girl tonight. We had two firsts tonight. The first was when I took her out of the tub and stood her on a towel, she pee'd all over it. Needless to say I put her back in the tub and rinsed her off. The other first was tonight when I was laying down with her I told her "I love you" and I signed it and gave her a hug. She layed back down, then pulled me in for a hug and signed as well as said "I love you". Talk about melting my heart!

She fell asleep very quickly tonight. She was a tired girl.

Lisa, Jeff, and Gracie