Saturday, May 9, 2009

Saturday - A Day at Home

Gracie slept quite well last night. I awoke every hour to check on her and make sure her fever hadn't returned. I'm happy to say we have been fever free since last night. Gracie was very snuggly this morning and slept in until almost 7:30 a.m. -- that was my Mother's Day present!!!!

It was very evident that Gracie wasn't feeling the best today. She was either very happy or very unhappy and it didn't take much to go from one to the other. Her appetite wasn't great today. As always her fruit was eaten up, but the other stuff was nibbled on. However, when I brought out the M&M's, there was room in her tummy for those! Usually I can count on her to drink quite a bit when she doesn't have an appetite, but I really had to push liquids today too.

Gracie took a 45 minute morning nap and a 2+ hour afternoon nap. Having had a wakeful night, I snuggled in with her for part of her afternoon snooze. Gracie enjoyed her bath tonight too. Maybe it just felt good to be clean. We let her stay in her pajamas all day. That is a rare occurence at our house!

We increased Gracie's Topamax (epilepsy meds) today to what is hopefully her maximum dose for right now. We are keeping steady on the Vigabatrin (her I.S. med) for this week and will decrease it again next week. I'm hoping the increase in the Topamax helps with the absence seizures. We didn't have any today.

Gracie went to sleep about 8:30 p.m. and is a little restless. Hopefully she will be well rested for Sunday and I'm hoping the rest will be healing.

Wishing all of you Mother's, a very Happy Mother's Day tomorrow.

Love,
Lisa, Jeff, and Gracie

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