GREAT Day!!!!

It was a two bottle night last night. Gracie got up at 1:30 a.m. and 4:10 a.m. and was starving. The steroids at work. She awoke in a great mood and remained that way ALL day. She was happy and smiley and walked everywhere and got into lots of trouble. Mommy has to watch her like a hawk as she has a great love for the waste basket, the stove, and the dishwasher. She can also reach the table and countertops and likes to grab anything in arms length. Her G.I. issues seemed to be much better today even though it was an antibiotic day. Thank heavens for Miralax! Gracie took a nap on the floor in her bedroom this afternoon. Usually she just crawls out when she wakes up and greets us. Today I was working in the kitchen, I look over in the living room and there was Gracie walking out from her nap today. I'm not sure where she pulled herself up, but she was all smiles.

I talked with Gracie's pediatric neurologist today and she is very encouraged by Gracie's progress and lack of spasms. We talked about the spasm(s) she has every morning during nap time and how I'm not quite sure if it is one or not. Since it happens during sleep, she is not convinced that it is an actual spasm either. She is also encouraged by Gracie's continued progress with her motor skills. So the plan is for Gracie to have another EEG on Monday and then we meet with her neurologist directly following that. That will tell us if we truly have things under control. If we do, we will slowly begin to back off the meds. This will more than likely be a 6 - 8 week process. Then we watch very closely as infantile spasms can sometimes return. We'll hope and pray that is not the case with little Miss Grace.

Auntie Sheila and Cousins Kayla and Jason stopped by today for a visit. Gracie loved the attention and had an abundance of smiles and goofy looks for them. They especially enjoyed Gracie's keen sense in knowing if there was food being eaten anywhere. Where there is food, there is Grace.

We are truly ecstatic about Gracie's good mood and her great progress. We continue to pray for healing and a good outcome on her EEG next week. Thanks so much for all of your prayers. We know they are being heard!

Love,
Lisa, Jeff, and Gracie