Thursday, December 18, 2008

Hyper Girl -- But Fewer Spasms

The prednisolone makes Gracie quite hyper so she has a hard time staying asleep. She tossed and turned and tossed and turned from 3:30 - 5:30 a.m. She finally got back to sleep and had a peaceful rest until about 8:00 a.m. She awoke in the best mood. This was great because she had a field trip to daycare today. Gracie spent a couple of hours with Barb and Michelle at daycare. They informed me they needed Gracie for a couple of hours -- they wouldn't tell me why. This is the season of secrets. Gracie was very happy to see them and had a good morning. She even joined them for lunch -- spaghetti -- one of her favorites.

We had fewer spasms today, I think last count was 10 or 11. Yay! I hope this is a sign that the meds are working. She took a couple of short naps this afternoon. 30 minutes on her own and 45 minutes on mom as we rocked. She is just restless enough that if I put her down she wakes up. I don't mind -- it's good snuggle time.

Tonight we saw the irritable Grace come out. She did fine for her blood pressure check and weight. She actually lost a couple of ounces and her blood pressure was good. Then we went for a blood draw and she did good for that too. The meltdown happened in the lobby as she did not want her coat on when we were ready to leave. I think she had just had enough! The lab techs commented that they have never seen her unhappy like that and were amazed that she had such a temper. We don't see it often, but when we do...watch out.

Hoping and praying for the spasms to decrease even more tomorrow. Or they could just disappear...we would certainly welcome that.

Love,
Lisa, Jeff, and Gracie

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