Gracie had a rough morning. Her little tummy was not feeling well. I spent most of the morning walking and bouncing her. She started to feel better this afternoon and played with her books and toys. We had a fair number of spasms today.
Gracie's physical therapist, Sandy, came over this afternoon and Gracie showed her how she can walk. Sandy liked to see how Gracie is very slow and deliberate with her steps. She also commented on how much Gracie has improved with her balance and steadiness. She did witness a couple of her spasms and we both agreed that she needs a helmet in case she is walking when one of those hit. So Sandy measured her for a helmet and gave us the appropriate information.
The good news of the day is that the Vigabatrin (the new meds) arrived from Canada today. We will start those tomorrow and hope and pray for success. We will slowly work Grace up to the desired dose. One pill daily this week, two pills daily next week, and then on the third week, we'll do three pills daily. We have to cut and crush these pills.
Gracie had her weight and blood pressure checked this evening. She gained a few ounces, but nothing substantial. Her blood pressure was good as well. She was very smiley on the trip to her appointment. I think she was happy to get out of the house.
Love,
Lisa, Jeff, and Gracie
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