Gracie woke up in an exceptionally great mood today. Since we started the ACTH, she has just been a bear when she wakes up because she is sooooooooooooo hungry. Not today, she had been sleeping on the floor in her room and she just crawled out with a big smile on her face to welcome the day. Her morning continued much the same. She was happy, smiling, and extremely agreeable today. Mondays are usually more difficult because she has to take her antibiotic that she hasn't had to take for a couple of days. She even cooperated and sucked that right down. Hmmmm.
Gracie was a mover and a shaker today. Since we don't have her helmet yet, I just followed her all around, because she pulled herself up on EVERYTHING today. Once there, her balance doesn't always keep her there and she falls straight backward. Not a good thing for a tall girl with a head that doesn't bounce.
Gracie's tummy was acting up this afternoon, yet she was still quite mellow and moved around. We did get the results back from Gracie's stool samples and everything looks good there, so we were very relieved about that. We also had her blood pressure and weight check tonight. She is now 30 lbs. and 5 oz., and her blood pressure was up a bit too, but not terribly concerning.
Gracie had less spasms today than the last couple of days. Although she does seem to be getting stronger ones. I'm not sure what that means. Tomorrow we double her dose of Vigabatrin. I pray that we see the spasms continue to lessen.
We hope and pray that all of you needing to travel in this winter snowfall stay safe.
Love,
Lisa, Jeff, and Gracie
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