We started out our morning by a visit to pediatrics at Mayo Clinic. Gracie had blood in her stool yesterday and with all of the meds she is on we can't take such things lightly. We are taking a number of stool samples to be checked out and we had some blood tests. All the blood tests came back fine with the exception of Gracie's white blood cell counts are way up, which could indicate an infection. She doesn't seem to have any infections that we can tell, so will watch that and the results of the stool samples may help to clear things up. We are also forcing fruits, veggies, and juices to make sure all is soft in that area.
Gracie's physician gave her instructions not to make mommy and daddy worry so much. Boy, did she have that one right.
Gracie had a very happy day, she played, she walked a bit, and pulled herself up everywhere. We are realizing we need that helmet to come very quickly as she becomes more mobile, we're having more and more head bonks as she becomes a little more confident. We pretty much follow her EVERYWHERE because we never know when she is going to pull herself up on a chair or couch and then lose her balance and fall backward.
We had about 20 spasms today, one quite violent when she was in her high chair that caused to her to move quite a bit. I was glad she was sitting for that one. I really haven't seen any improvement with the Vigabatrin, but we increase the dose again on Tuesday.
Enjoy your weekend.
Love,
Lisa, Jeff, & Gracie
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