Gracie had a pretty good night last night. She still has labored breathing, but that is to be expected with the pneumonia. She awoke at 9:30 p.m. needing a bottle and a little snuggling and then slept until 3 a.m. That was a treat. She was up again at 5 a.m., 6 a.m., and then went down until 8 a.m. Jeff and I slept in til then as well. It felt great.
We are starting to see signs of our good natured Gracie returning as we've decreased the Prednisolone. She sang, she smiled, and she jabbered throughout the day. She also initiated some independent play a couple of times. She still needed a lot of snuggling and holding and we were only too happy to do it.
We had a follow up appointment with Gracie's primary pediatrician this afternoon and things are looking good. It's still more of an effort for her to breathe and her oxygen saturation is around 93% - so we still have some room for improvement, but all in all she's doing good. We'll have a follow up chest x-ray and appointment with Gracie's pediatrician in a month to make sure all continues to look good.
Gracie did start to run a low grade fever again this evening, but a little Tylenol seemed to take care of that. She was a very tired girl and is snuggled in, hopefully having sweet dreams.
Tomorrow I turn the blog over to Jeff as I return to work. I'm extremely thankful to my boss and all of my colleagues for covering for me and taking on extra work to allow me to be gone for so long. Jeff will be off of work to care for Gracie for approximately a month. Our hope is that by that time she will be on a low enough dose of Prednisolone that she won't need the constant holding and the restlessness and irritability will be gone.
We still welcome all prayers. We continue to pray that Gracie heals from her pneumonia and that as we reduce the steroids, we remain spasmless.
Love,
Lisa, Jeff, and Gracie
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment