Tired Tuesday!

Gracie had a very restless night last night again and she woke up at 5:30 a.m. to greet the day. Morning is her best time of day and she was a little more active in the early morning. She did some walking and I coaxed her into playing with some toys. We also read a few books. We used to read book after book after book, but she is a little too restless for that on the Prednisolone, so we usually only get 2 or 3 in at a time, and sometimes just one.

Gracie took two morning naps on my shoulder. We had some lunch and shortly after we headed to the clinic. We stopped by work for a little bit and we were overwhelmed by all of the good wishes and cheers of encouragement and happiness with our results yesterday. Then we headed to meet with Gracie's pediatrician. At this point Gracie was tired and pretty uncooperative. She did show our pediatrician her walking skills. Our appointment was a well child visit, we do these a little more often for Gracie than the norm. The primary purpose of this visit was to talk about intervention for speech. We decided that with all Gracie is going through, we would hold off on a speech consult at this time and revisit the idea in 8 weeks once she was pretty close to being off steroids. We also had a goal of weening Gracie off a bottle by 18 months and we also decided this was not the time to pursue that.

Gracie was so tired from not having an afternoon nap that she is now asleep. I wonder if my night will be shortened or if she will sleep through -- with feedings of course.

Love,
Lisa, Jeff, and Gracie