Friday, January 2, 2009

Another NO SPASMS Day!!! :)

Gracie had a little more restful night, although she was up every three hours for a bottle. She did sleep in until 8:00 a.m., what a treat! She had a good morning, although I'm finding the longer she is on Prednosolone, the more she doesn't want to do anything but be held. We try to get her to play and we can get her to do so for a little while if we are right there, but she doesn't initiate on her own. We did have a lot of smiles this morning.

Gracie was in dire need of new shoes. Her foot is so wide and she didn't have any that were wide enough, so we took her to have her foot measured today at Schmitt's Stride Rite. They know their shoes! We ended up getting her some extra wide tennis shoes in pink and blue. They are very cute and you can tell they are more comfortable for her. We also took her to the mall to get daddy some new shoes. She did quite good out and about, so we stopped at the food court and had some lunch. Unfortunately Gracie and mommy had tummy troubles after that. We came home and took a nap together. The rest of the day she just didn't feel well and insisted upon being held and bounced.

We are thrilled to report that we had a second day of ZERO spasms!!!

Have a good weekend.

Love,
Lisa, Jeff, and Gracie

2 comments:

kelly said...

That is really great! We are very happy for her!

I also just wanted to tell you that Max (17 months and no problems) also has a hard time initiating play by himself and wants to be held a great majority of the time. Anyway, just some perspective that all my kids really get this way around this age, so maybe it's not *completely* due to the steriods...

Brownie said...

That's great... really great.

When I'm working with families I always try to think of what is "normal". Would Blondie do that? Would Red do that? It puts a perspective on what some people (a.k.a. social workers) think might be very odd.

for example... yesterday Red had what Sir called a "brain spaz". Sir was sitting at the kitchen table when all of a sudden Red came running full tilt into the kitchen, ran straight to the fridge, wildly swiped all the magnet numbers off, then ran full speed out of the kitchen and sat down in front of the TV.

So when a social worker says a kid is out of control - or something- I really take it with a grain of salt.

I don't know if this had anything to do with what you blogged on... lol

I think I mean... it helps to compare to a "normal" kid - like Kelly above just said... ROFL!