Today we decreased Gracie's steroid injection to just one a day and we are doing it in the evening, so she was able to sleep in this morning. She had quite a good morning, even played on her own with her toys for a little while. This was a good sign that she was feeling a little better. We visited daycare for about 30 minutes and she enjoyed that, but screamed most of the way home as she was getting hungry and tired. This afternoon was not so good, just wanted to be held and bounced all afternoon. Couldn't quite get comfortable.
Tonight we had her blood pressure and weight checked. Her blood pressure was still lower than what it was in the hospital and she gained about a 1/2 lb. Then we had to have her blood drawn. Well she is a little sick of pokes and was not happy about this. It took quite a while to calm her down afterward. After that we came home, ate, and then had to do her injection. Tonight she did not want any part of it. It took us awhile to calm her down after that too. Jeff is the one that holds her, while I do the injection. I guess Jeff is the big "meanie" in her mind, as she didn't want anything to do with him for awhile afterward. They did make up and become friends again before bedtime.
Our good news of the day is that her spasms lessened. We saw around 20 of them today...we usually see about 40 a day. I hope this is a sign of good things to come. Please keep those prayers coming!
All our love,
Lisa, Jeff, & Gracie
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1 comment:
poor kid! I'm glad the spasms have lessened. You must be so tired. *hugs*
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