We have reduced Gracie's steroid injections to every other day. Last night was the first day she didn't have one. We can tell the difference in her mood. She was a very happy girl today, her smiley, social personality started to return today. She played, she laughed, she sang, and she crawled about the living room playing with us and her toys. She even took two 30 minute naps. Unfortunately, the spasms returned with a vengeance as well. She had so many of them today that we lost count and some of them were so strong. Tonight we give her another injection, it will be interesting to see if that makes a difference in the number of spasms tomorrow. We need the Vigabatrin (new meds) to arrive from Canada quickly!
Our neurologist witnessed one of Gracie's spasms yesterday and commented how unusual it was that Gracie smiles after them. Most kids cry and fuss. The neurologist truly looks at Gracie as a unique individual and we really like that about her.
We had Gracie's weight and blood pressure checked today. She actually lost a couple of ounces. and her blood pressure was good as well. The nurse that took her blood pressure was awesome with her. Gracie has taken to crying and screaming when she gets her blood pressure taken, this nurse really worked with her to make her comfortable before she even began. It worked wonders. I am so thankful for all the wonderful nurses, physicians, clinical assistants, and other healthcare specialists that we have encountered. We are blessed.
Love,
Lisa, Jeff, and Gracie
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment