Wednesday - Pediatric Neurology Visit

Gracie had an incredibly restless night last night. She tossed and turned all night long. We let her sleep in til 7:30 a.m., she ate a little breakfast and then she was visited by Emily, her early education teacher. Gracie was happy to see Emily and her time with us went by very quickly. Emily was pleased to see Gracie is continuing to make progress.

Gracie seemed incredibly tired today. We tried going down for a morning nap, but she wasn't tired enough to fall asleep so we just snuggled and giggled a little bit and then got up to play. Gracie did take a 45 minute nap shortly after lunch. I was hoping for a much longer one since she had her pediatric neurology appointment today and I wanted her to be well rested for that.

Gracie had an absence seizure today and with the odd little movements going on, we were happy to have her appointment today. Gracie loves her neurologist, Dr. N. Immediately upon entering the room, Gracie climbed onto Dr. N's lap and that is where she remained for most of the appointment. We explained that we were seeing some odd movements and have had two absence seizures in less than a week. Gracie always seems to come through with showing off her seizure issues and she had one of her odd movements in the office so Dr. N. could witness it. Here is the plan, we are increasing her nightly dose of her current seizure med and are hoping this takes care of things. I will touch base with Dr. N. in a week. If we see the seizure activity go away, we'll do a follow up EEG in 1-2 months and will have a follow-up with Dr. N. at that time. If the med increase doesn't help the situation, we will be back in the hospital for a 24 hour EEG. I hope and pray the med increase takes care of things for us. It was a good appointment and I got some other questions answered. I love Dr. N. too!

On the way home from her appointment, Gracie fell asleep and is still snoozing. I'm going to go eat some pizza and then I will awake her so we can get her meds in her for the night. If it weren't for the meds, I would consider letting her sleep and see if she would sleep the night through. Since I'm sure we'll be up later with her tonight...I'm writing the blog early.

We would still be extremely appreciative of any prayers for our dear sweet Gracie. By the way, today is the LAST day of her being one. Tomorrow our little girl turns two. Where did the time go?

Love,
Lisa, Jeff, and Gracie