Vacation

We've missed writing for a few days as we were off vacationing at the Wisconsin Dells. Gracie had a great time there and enjoyed the undivided attention of some of her cousins, aunts, and uncles.

Gracie enjoyed the water the first day, but had come down with a cold and kept shivering, so we didn't stay in it too long. The next day she seemed very tired and really didn't want to go in the water at all. I had come down with a cold by this time too and didn't really want too much water action. We had a great time visiting and people watching though.

Gracie's sleep schedule was way off because who wants to take a nap or go to bed when there is fun to be had, add to that a head cold too. Lack of sleep for someone with seizure disorders is not a good combination and we noticed a few odd involuntary movements in her arms. We've been watching her pretty close and praying that this is a reaction to lack of sleep and not the infantile spasms returning. We would appreciate any extra prayers you might have for her. We've got her back to her bedtime routine today and will be careful to do so for the next couple of days and continue to keep an eye on her. We also have a very timely appointment with her pediatric neurologist on Wednesday, so hopefully we'll know more or have a game plan should we need one.

Gracie had some great successes this weekend. She said "bye" for the first time. She jabbered and was extremely engaged all weekend. She used sign language and was just a very happy girl. We didn't experience any major tantrums, a few vocalizations of dislike, but was overall very content and loving all of the attention.

Grandma and Grandpa D came over tonight for supper and Gracie enjoyed the company. She was tired but happy. She fell asleep before 8 p.m. tonight and is sleeping peacefully. I'm about ready to join her in sleepy land.

Love,
Lisa, Jeff, and Gracie