Thursday - A Day for Good News

Gracie had a good night that ended all too soon for her liking. We had to get her up at 5:00 a.m. to take her epilepsy meds as she needed to be fasting for her echocardiogram today in case they needed to sedate her. So not only did we get her up too early, but she couldn't eat either. I was quite impressed, she did quite well.

We ended up not having to sedate her for the echo since she was quite tired and layed pretty still with me holding her hand, that is until the end, she let out quite the cry. We were thrilled that we didn't need to go the sedation route. Since this was a follow up echo, they were rechecking her mitral aortic and tricuspid valves, both of which are mildly thickened, and she also has a small PDA (patent ductus arteriosus). We got good news that there have been no changes in the last 6 months. We don't need to have another echo for a year. YAY!!! The nurse, the technician, and her pediatric cardiologist are top notch!!

After our appointment we went to the patient cafeteria to have some breakfast (at 10:30 a.m.) and Grace was waving at somebody behind me, but it wasn't her usual wave, she was waving with her hand by opening and closing it. This is a first. I looked behind me and that is how the person waving at her was doing it. Yay...another success.

After that we came home and Gracie and I took a nap, had lunch, and then we ran to the store for a couple of things. The rest of our day consisted of another nap and just playing around home. Gracie was in a very good mood today and had a lot of smiles for us.

Gracie had a hard time going to sleep tonight, her afternoon nap went a little late. Our whole schedule for today was off. She is now sleeping peacefully and I had better go join her. Morning will be here soon.

Thanks so much to all of you who continue to keep Gracie in your prayers. They are being heard and answered. Each day brings new successes. She is learning so many new things and is becoming so aware of her surroundings.

Love,
Lisa, Jeff, and Gracie