Monday - Neurology Appointment

Gracie started out her day on Monday at daycare giving our daycare provider the cold shoulder.  We think it had to do with the fact that she was gone on Friday.  Didn't make it easy on her going to the bus for school, didn't get off the bus easily, but then after that all was fine.  She is such a funny kid.

She did have a fun day at school, they did some new things on the smart board and also had gym class.  I'm told that Gracie loved gym time.  I'm not surprised.

Jeff picked Gracie up a little early and we headed to the clinic for her three month neurology appointment.  Gracie loves going there, loves everyone she comes in contact with, and pretty much considers it her second home.  She loves taking her friend Rachel around the desk area for walks and she loves Dr. N., her neurologist.  She always has a hug for her and sits on her lap to draw, talk on the phone, or play on the computer.  Gracie was very verbal and active.  Gracie has been doing so well since being on brand name seizure meds, her negative behaviors have improved greatly and we have had no seizure breakthrough, which is a first.  So Gracie is 6 months seizure free with the brand name meds.  Now if our insurance company would only acknowledge the fact that she needs these and let them go against our out of pocket maximum we would be very happy.  We are still in the appeals process for that request. 

At one point during our appointment, Gracie had just finished a drink of water and burped very loudly right in Dr. N's face.  Dr. N. is so great with her.  She just asked her "What do you say?"  And I think much to Dr. N.'s surprise, Gracie didn't miss a beat with her reply of "Excuse me."  It was so cute.

We walked away from this appointment really feeling good, that we have things well under control...seizures, behaviors, and validation that we are handling any negative behavior appropriately.

Gracie had a good evening and slept great until about 1:00 a.m., then she became very restless.  She tossed, turned, and coughed til about 2:30 a.m., when she totally awoke and stayed awake until about 4:00 a.m.  YAWN.  I think she may take a nice little nap after school today.

Gracie was in a good mood when I took her to daycare and was happy to see her daycare mom again!  :)

Have a great day.

Love,
Lisa, Jeff, and Gracie