Monday - Not a Great Day

Gracie had a pretty rough Monday.  I think heat certainly contributed to it.  When I dropped her off at daycare she seemed fine, but she didn't want to get on the bus for school and cried out for "mama" when she was carried on.  She has never done that before.  School isn't air conditioned and she was hot.  They were good about spraying her with water throughout the morning and they did not go outside to play because of the heat.  They even put water in the sensory table to cool the kids off a bit.  The bus was even warmer, despite having all the windows open.  Children with Sotos Syndrome have a hard time regulating body temperature and Gracie's seizure meds don't allow her to sweat as she should, so heat is really, really hard on her. 

Back at daycare, Gracie was pretty out of it.  She did not want to play on the slip n slide pool, did not want to put on her swimsuit, but yet did not want to get out of the sun.  Go figure.

Once at home, she seemed to do better.  Our air conditioning was running non-stop.  We have to keep it cool for our little hot body.  She has been a major mama's girl lately, to the point of having great anxiety if I'm out of sight at home.  She had a huge tantrum for Jeff when I went to the bathroom and she would not calm down or stop screaming/crying until I was back to hold and comfort her.   I'm not sure if this is just because she is still struggling a bit with her cold or if this is a new phase. 

Gracie was extremely excited when we went to open her backpack from school.  She had a birthday card in it from the school principal and I heard the principal came to personally wish her a happy birthday.  They are celebrating early since she has a summer birthday.  When we took the card out of her back pack, she kept saying "party, party, party" in a very excited voice.  They are having an ice cream party at school tomorrow to celebrate the summer birthdays! 

Gracie had a rough night, she kept coughing and coughing through the wee hours of the morning.  I walked and held her for a while just to keep her upright from 2:30 - 3:30 a.m.  That seemed to help a bit.  She did wake up in a good mood this morning, but was very clingy when I dropped her off at daycare.

Gracie did go poop in the toilet this morning so she got to wear princess pants pull ups to daycare this morning.  That was a big deal!  :)

Hopefully today will be a better one for our little pumpkin.

Love,
Lisa, Jeff, and Gracie