Gracie had school yesterday and I'm not sure what she did, but there were tell tale signs that she did a project of some sort...a big splotch of orange paint on her skirt, and some blue something or other under her fingernails. I always get curious when I see hints of a project. She did bring home a couple of projects in her take home folder -- a painted green and brown frog. She used the paint to it's full potential...you can barely see the frog outline underneath the paint. She also had a cut out of a coat that she decorated with buttons and little pieces of fabric. She wanted to pull the buttons off at home. No, no, no!
Rumor has it that Gracie climbed the rock wall on the playset at daycare yesterday with a little bit of help. She played outside a lot and then Jeff picked her up early to head to the clinic for her neurology appointment. Gracie had so much fun, she got to see her favorite clinical assistants and take them on walks and give them hugs, she got to see her former physical therapist, occupational therapist, and of course our beloved pediatric neurologist, Dr. N. We also got to meet Dr. N.'s nurse. I've talked to her many times, so we were thrilled to finally meet her. She gave us information about the Epilepsy Stroll sponsored by the Epilepsy Foundation of MN that is coming up in August and we're pumped about it. I think we need to form a "Team Gracie"!
Our neurology visit went very well. We found out from a recent blood test that Gracie metabolizes her seizure meds very very fast, thus the need for such high doses. The fact that she metabolizes them very rapidly indicates her liver is working very well. The downfall to this is that she requires such high doses to get enough in her system to last the day. So we would either need to bump Gracie's meds up yet again or try a new approach and split her current dose to be administered three times a day rather than just twice a day. Currently Gracie gets 5 - 25 mg capsules in the morning and 5 - 25 mg capsules in the evening. We are going to change that to 4 in the a.m., 2 at lunch time, and 4 in the p.m. Our daycare provider was super sweet about taking on the administering of the lunch time dose.
Other than that, Gracie showed off some of her talking skills and sat on her neurologist's lap and had hugs and snuggles for her. It was a good appointment and we all went home feeling good about it.
Gracie and I hung out together last night as Jeff was performing at Hope Lodge. She was very tired from her big day, yet had a really hard time falling asleep. I suspect she was over-tired. She slept very well last night and woke up refreshed this morning.
This morning I asked her if she would be my "sweetie pie" today. I ask her this alot, and sometimes she says "yes" and sometimes she likes to tease me and tell me "no" and then laugh. Well today when I asked, she told me "daddy's", as in she was going to be daddy's sweetie pie. Then she gave me a big smile and changed her mind again and said "Brock". Brock is a little boy at school that I hear alot about. She was quite proud of this statement.
Today there was talk about going to a small outdoor zoo. Whatever she is doing, I'm sure it will be fun.
Love,
Lisa, Jeff, and Gracie
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