Rough Weekend

Gracie not wanting to eat or drink continued into the weekend.  On Saturday explosive diarrhea was also added to the mix.  On Sunday all heck broke loose...diarrhea and extreme behaviors.  I lost count how many times she bit Jeff and I.  I even found her biting herself.  She also started kicking herself in the head with her knee.  Something was definitely not right!  The only thing that made her happy was being pushed in her stroller, pulled in her wagon, or swinging. 

On Wednesday of last week we started a new batch of her seizure meds.  I think I mentioned in the blog that I was a bit concerned as they were different and this is when the loss of appetite and pep began.  We do have some tablets that we can dissolve in liquid and syringe in her mouth if she is vomiting or has a medical procedure.  These don't taste very good so we don't use these all the time.  I decided to change to those last night as it was a bit too coincidental that all of this began when we started the new batch of meds.  She awoke this morning and was hungry, she even asked for food.  The extreme behaviors are gone (thank you God).  The diarrhea is gone although she is still gassy (which she blames on Jeff, as in "Daddy toot").  She had more pep today, although she is not as peppy as usual and her appetite isn't quite what it usually is, she is definitely feeling better.  I touched base with her neurologist and she is thinking what I was thinking...we will need to put her on name brand Topamax and not use the generic formula.  We're going to continue to use the tablets for a couple of days and then make a decision based on how she is doing. 

I stayed home with her this morning and Jeff is with her this afternoon.  We both have noticed a positive change.  I'm pretty sure she'll be back at daycare tomorrow. 

Love,
Lisa, Jeff, and Gracie