Gracie did not want to wake up this morning. She was all snuggled in her prayer quilt that she got when she was suffering from I.S. This quilt by the way, just makes me smile everytime I see it. To know every knot tied on it represents a prayer that was said for Gracie. To know that love and caring came from such special people. When I see her wrapped in it, it brings me such contentment and joy. I just watched her sleep for a few minutes...ahhh such peace and innocence.
Gracie was a good girl this morning and we were running a little late, so we "marched" our way down the stairs to the garage to the car to make leaving a little more fun and fast. Gracie was a little clingy when we got to daycare, but that didn't last long. Soon she was waving me out the door and blowing me kisses.
Jeff picked Gracie up at daycare and then zoomed back to the clinic for occupational therapy. I don't look forward to OT as this is much harder for Gracie and she doesn't seem to enjoy it. We love her occupational therapist, but it is just evident this is more work for Gracie and she struggles more trying to accomplish goals. Early on we worked very hard on purposeful release, a concept that took Gracie a long time to get. Now we are working on targeted release. Putting a circle into a circle hole, putting objects into a container, or balls though pvc pipe. She did a number of these items today at OT. She didn't get nearly as frustrated when she was made to finish a task. She got to play with chocolate pudding on the mirror. Not only is is fun to play in, but it is fun to lick too. Jeff and I were thrilled with her progress, as was her OT. We really felt good about today's session.
Shortly after we arrived home, Aunt Arlene and Grandma and Grandpa B came over for a visit. Gracie played shy at first, but warmed up after a bit. She loved when Auntie Arlene would bounce her on her knees and make horse sounds. Gracie even signed "horse". When Arlene was ready to leave, Gracie signed horse again...she wanted more rides.
Gracie is sleeping now, but was quite restless. When she falls asleep she has many twitches..big twitches. Some days worse than others. It always makes me nervous because of her seizure activity...but they are nothing to worry about according to her many EEG's.
Sweet dreams to all. To all our family and friends who are sick with the flu, or with any other ailment...our prayers are with you for a speedy recovery.
Love,
Lisa, Jeff, and Gracie
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