Gracie awoke this morning at 6:00 a.m., so much for sleeping in! She snuggled with me for awhile and then went on a hunt for daddy and knew just where to find him...in bed! Gracie was in great mood despite having a faucet for a nose today. Her cold is in full drainage mode.
We went to get Gracie's shoes checked for size and all is well there. Then we went with daddy to get his haircut and visit honorary Grandma Gina.
When we got home we had lunch and were excited to have visitors. Auntie Sheila and cousin Kayla stopped by to play and Gracie was only too happy to have visitors. After a nap, Aunt Arlene and Uncle Dave came over to play. Gracie was happy to play and snuggle.
Today we decreased the Vigabatrin yet again and started the increase of her Topamax. She seemed a little more tired than usual at times, but did pretty good despite that. Hopefully this will help with the increased jerking movements when she is sleeping.
All of the fun with family tired Gracie out. She was fast asleep before 8:00 p.m. tonight.
Love,
Lisa, Jeff, and Gracie
Saturday, May 2, 2009
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